ALS ASSOCIATION SCHEDULES WALK TO RAISE FUNDS TO FIGHT DISEASE Association Set to Raise $200,000 at Local Walk
WHAT: Local community members will join patients and family members on Saturday, September 14 for the annual Lowell Smith Circle of Courage Walk to defeat ALS. The event will feature music, food, and giveaways. The band, Hand of Fate will be performing throughout the event.
WHEN: The one-mile walk will take place at Long Branch Park, 3813 Long Branch Road, Liverpool, NY on Saturday, September 14, 2019. Check-in begins at 9:30 a.m.; the walk will start at 11 a.m.
WHY: Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects the function of nerves and muscles. The progressive degeneration of the motor neurons in ALS eventually leads to their death. Based on U.S. population studies, over 6,000 people in the U.S. are diagnosed with ALS each year. (That's 15 new cases a day.) It is estimated that at least 16,000 Americans have the disease at any given time. Over 300 people living with ALS in Upstate New York were served in 2018.
Participation in the Walk to Defeat ALS has a direct impact on people living with ALS and their families at the local level. Through education, support groups, access to care and advocacy, we are working to defeat ALS and provide hope to people living with ALS and their families.
HOW: In 2018, the Upstate New York Chapter provided $168,000 in ALS Assistance and Caregiver Respite grants, loaned 190 durable medical equipment items from regional loan closets, provided 173 home, office, hospital, or facility visits, and conducted 22 advocacy meetings and 64 outreach meetings.
For more information, contact Monica Shworles, regional development manager at 315-413-0121 or mshworles@alsaupstateny.org.